Brynlyn and Piglet

I love this picture. Brynlyn loves her pacifier and of course it's the huge hospital one that she's fond of. It's still hard for her to keep it in her mouth and so Piglet became my little helper in keeping her pacifier in. This is actually what the nurses in PICU would do to keep her paci in. It works great!

Yesterday (Tuesday 9-26) we had a DR visit with Dr. Lacey (the pediatric surgeon). It was a follow up visit from her fundo surgery. It will be five weeks (on Friday) since her surgery. My how time flies...He thought her incision site looked good. However, the last few of her stitches were still in place on her skin barely holding the tube into her. So he put a stoma bandage of some sorts on it along with a clamp to secure the tube. Brynlyn really didn't enjoy getting the remaining stitches cut out, but it was nice to get it held more securely into place. The track that leads into her stomach needs a few more weeks to heal. This is a good temporary fix until then.

Our next discussion was that Brynlyn will go back into the office in two weeks to replace her "foley tube" feeding tube for her "button" g-tube. I took part in Button Training 101 by the nurse in the office. This g-tube button experience is going to be quite interesting. Check out www.mic-key.com for more information on these feeding g-tubes. We actually have two choices of g-tubes: the Mic-key and the Nutriport g-tube. I plan on doing research on both these next few weeks so we can make the best decision on which one to use for Brynlyn. There are pros and cons to both. Right now we're leaning towards the Nutriport g-tube.

Then, we also went to Dr. Stewart's office for follow up (pulmonologist). She and Brynlyn had some good bonding time. It was cute because Brynlyn was a little fussy because she had missed her naps and she was bone tired from seeing these DR's. So I was trying to calm her while waiting to see Dr. Stewart. The minute the DR walked in and held Brynlyn (which she calls "Brynlyn time", she stopped fussing and was giving the biggest smiles. More proof how much she loves Dr. S. Dr. S thought Brynlyn looked great and sounded very clear. We're still running a course of antibiotics just to make sure the pneumonia is completely cleared up, but she's thinking it's doing much better.

Brynlyn has developed thrush in her mouth (most likely due to all of the antibiotics that she's on.) Unfortunately, antibiotics destory good and bad bacteria. And she also has a horrible diaper rash right now, which Dr. S says is linked together. So she has added one more medication to try and clear her up.

Tomorrow (Thursday 9-28) we have our first assessment with CRS (Child Rehabilitative Services.) It's a state funded program that children with special needs qualify to be a part of. So tomorrow is our enrollment visit/nurse assessment. I'll let you know how that goes.

Thank you for your interest and prayers for our family and our sweet Brynlyn. She's thriving because of all of the love and prayers said for her.