Brynlyn Anna Jensen was born on June 29th, 2006 in Mesa, Arizona. She weighed 6 lbs. 13 oz. and was 20 1/2 inches long. She was born at Banner Mesa Hospital in Mesa and was immediately put on oxygen. 24 hours later, she was in distress and they air-evaced her to Banner Desert Hospital in Mesa so she could be ventilated. While at Desert, her heart went into great distress and they discovered she had a severe congenital heart defect (CHD). She was then air-evaced over to St. Joseph's Medical Center in Phoenix, Arizona. She spent the first 3 days in NICU and then was transferred to PICU to begin preparation for heart surgery.
Her diagnosis in relation to her heart is: Tetralogy of Fallot, Truncus Arteriosus, Pulmonary Atresia, Ventricular Septal Defect (VSD), Right Aortic Arch and Discontinuous Pulmonary Arteries.
In addition to her heart defects, she has been diagnosed with DiGeorge Syndrome, 22Q11.2 deletion. All of her complications can be categorized under the genetic syndrome. In addition to her heart problems, she was born with abnormalities with her trachea. And she also has laryngotracheomalacia which is causing issues with breathing as well as feeding issues. As one of the neonatologists said to us at NICU, "Your baby is very, very sick." Now we understand more fully of what she was telling us.
Brynlyn continues to beat the odds. More times than not she should not have made it through the night, but she continues to fight hard to be here with us. We are grateful for her and we are enjoying each precious day we have with our special baby girl.
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