The most beautiful things in the world cannot be seen or even touched, they must be felt with the heart.
~ Helen Keller ~
Wednesday, May 16, 2007
I love Grandma Sugar!
Brynlyn absolutely loves Grandma Sugar! They have definitely formed a special bond in their relationship. Grandma has been so "hands on" in learning everything about Brynlyn from her feeding tube to her button to her medications, etc. etc. etc. There's alot of things to learn in order to take care of Brynlyn and Grandma has not been nervous about learning any of it. And she takes care of Brynlyn so well that I am never nervous about leaving the baby behind for a few days because I know she's in great and loving hands! Thanks Mom! I hope you know how grateful we are for you.
i carry your heart with me (i carry it in my heart)
i am never without it (anywhere i go you go, my dear; and whatever is done by only me is your doing, my darling)
i fear no fate (for you are my fate, my sweet)
i want no world (for beautiful you are my world, my true) and it's you, you are whatever a moon has always meant and whatever a sun will always sing is you here is the deepest secret nobody knows
(here is the root of the root and the bud of the bud and the sky of the sky of a tree called life; which grows higher than the soul can hope or mind can hide) and this is the wonder that's keeping the stars apart
i carry your heart (i carry it in my heart)
Poetry by: ee cummings
DiGeorge Syndrome Awareness
CATCH-22 Acronym for 22Q11.2 Deletion
CATCH-22 = Acronym for = 22Q11.2 or aka DiGeorge Syndrome, Velofacialcardiac Syndrome, Strong Syndrome
C = Cardiac Defects A = Abnormal facies T = Thymic Hypoplasia C = Cleft Palate H = Hypocalcaemia
Brynlyn absolutely loves Grandma Sugar! They have definitely formed a special bond in their relationship. Grandma has been so "hands on" in learning everything about Brynlyn from her feeding tube to her button to her medications, etc. etc. etc. There's alot of things to learn in order to take care of Brynlyn and Grandma has not been nervous about learning any of it. And she takes care of Brynlyn so well that I am never nervous about leaving the baby behind for a few days because I know she's in great and loving hands! Thanks Mom! I hope you know how grateful we are for you. 
No comments:
Post a Comment