The most beautiful things in the world cannot be seen or even touched, they must be felt with the heart.
~ Helen Keller ~
Monday, June 04, 2007
Sat/Sun/Mon: So far, so good
These are some pictures taken on Saturday and Sunday when Brynlyn was in recovery. She was feeling so much better and already starting to look better. But we still had to spend the weekend in there just to finish recovery. They are taking her for a modified barium swallow study on Monday to see if she has the ability to swallow and eat real food.
i carry your heart with me (i carry it in my heart)
i am never without it (anywhere i go you go, my dear; and whatever is done by only me is your doing, my darling)
i fear no fate (for you are my fate, my sweet)
i want no world (for beautiful you are my world, my true) and it's you, you are whatever a moon has always meant and whatever a sun will always sing is you here is the deepest secret nobody knows
(here is the root of the root and the bud of the bud and the sky of the sky of a tree called life; which grows higher than the soul can hope or mind can hide) and this is the wonder that's keeping the stars apart
i carry your heart (i carry it in my heart)
Poetry by: ee cummings
DiGeorge Syndrome Awareness
CATCH-22 Acronym for 22Q11.2 Deletion
CATCH-22 = Acronym for = 22Q11.2 or aka DiGeorge Syndrome, Velofacialcardiac Syndrome, Strong Syndrome
C = Cardiac Defects A = Abnormal facies T = Thymic Hypoplasia C = Cleft Palate H = Hypocalcaemia
1 comment:
She doesn't eat regular food yet, right? Might this be the start of normal eating?
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