Welcome Home!

We never thought this day would come, but we are home...again. Mike and I were at church on Sunday sitting in sacrament meeting. (The girls had spent the night at Mike and Connie's house the night before and so they went to church with them.) Mike got a call from the hospital, which is usually never a good thing. The theory is: "No news is good news." However, this call was good news. We talked with Dr. Stewart (pulmonologist) and she asked us what we thought about taking Brynlyn home that day. We were so excited and had been ready for this since we had taken her in 30 days previously. And this was Brynlyn's number 70th day of total hospital days. Yikes...I think we have worn out our welcome with St. Joe's. ha ha

So Brynlyn is home and doing well. She still has pneumonia, so we give breathing treatments Q2 (every 2 hours even through the night at Q3). And her feeds are Q3 and then continuous feeding through the night through her g-tube, of course. She is also on 12 medications that all have to be given at all odd times of the day and different doses each day. There is even an antibiotic that is only given on M- T- W. I had to create a chart just to keep track of all of her meds.

We have already been back for follow up visits with the CV surgeon group and pulmonologist. In the upcoming weeks, we will continue to have follow up visits with our pulmonologist, CV surgeons, cardiologist, gastroenterologist, fundo pediatric surgeon, and pediatrician. So far, the DR's are pleased with her progress at home. And despite how crazy everything is right now, I know this is a better option than spending more days at the hospital. Brynlyn is doing great and everything is so far, so good.

Thanks for your interest and love and prayers for our family. We feel them daily and really appreciate all of the love and support from our dear family and friends. We'll post again with updates on Brynlyn so keep checking back.