We received a copy of “It’s My Heart” in the mail a little while back. This is a free hardbound book from an organization called The Children’s Heart Foundation. It is a great resource for parents of kids who have a CHD. It is also a great way to share info about your child’s defect with friends and family. It covers normal heart anatomy and function and has descriptions of all the different types of CHDs. It also explains the different types of acquired heart conditions (i.e. endocarditis). It explains the diagnostic tests, medical equipment, corrective surgeries and medications. There are sections which discuss lifestyle issues and concerns for both children and adults born with CHDs. Plus, there is a chapter on hospitalization with lots of tips on preparation for CHD patients of all ages.
Great book. I suggest you request yours today.
The Children’s Heart Foundation
“It’s My Heart” Book
Birth Day
June 29, 2006
I am a CHD Sweetheart!
First Heart Surgery
July 13, 2006
Fundoplication Surgery and Button Surgery
August 25, 2006
Blessing Day
October 6, 2006
First Christmas
December 25, 2006
St. Joseph's Billboard
May 25, 2007
Second Heart Surgery
May 29, 2007
First Birthday
June 29, 2007
St. Joseph's New Cardiac ICU
August 10, 2007
Our heroes and surgeons: Dr. Cleveland and Dr. Nigro
St. Joseph's CICU Nurses
August 10, 2007
Second Christmas
December 25, 2007
Brynlyn's 2nd Birthday
June 29th, 2008
All American Girl
July 4th, 2008
Brynlyn's 3rd Birthday
June 29th, 2009
Brynlyn's broken leg
June 15, 2010
Brynlyn and cousin Abby's 4th birthday
Aspen Grove Family Reunion
DiGeorge Syndrome Awareness
Brynlyn's Playlist
1 comment:
We have this book too. Although our particular defect, interrupted aortic arch is not listed, it is helpful for friends and family who are not in the heart community. It is nice to meet your family. All your girls are beautiful! Our family wishes you the best in the upcoming busy month of May.
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